Our Member of the Month this month is Elsie Mangham. In July 2022, Elsie was diagnosed with a brain tumour. The tumour has unfortunately caused Elsie to lose all of her sight in both eyes, and although she is now registered blind, she has not let this stop her one bit. ‘She has taken everything in her stride and been an absolute superstar!’… Read More
Life has taken an unexpected turn for Freddie and his family since his diagnosis at the end of June 2023. What began as a series of visits to doctors and emergency rooms for what seemed like routine illnesses—tonsillitis, sinusitis, hay fever—eventually led to a life-altering discovery. Today, we want to shine a light on Freddie, our Member of the Month, who has shown extraordinary strength and resilience in the face of adversity.… Read More
“Bethany had a hickman line inserted on the 15th of August, and she was started on an all-rounder chemotherapy, as a CT scan had shown that 2 mushy bits that were left behind from surgery had grown”… Read More
“Hari has faced many challenges so far, and his life has been filled with numerous medical appointments as well as serious hospital admissions. As Hari has gotten older, he has also been diagnosed with a genetic, mitochondrial condition…we just like to say that Hari’s diagnosis is awesome!”… Read More
On the 18th of February 2022, Katie & Timo’s life was flipped upside down when they encountered a parent’s worst nightmare. Their Little boy Niko, who was only two years old at the time, was diagnosed with B-Cell Acute lymphoblastic Leukaemia (ALL), a type of blood cancer. After confirmation of his diagnosis, Niko was quickly transferred to Great Ormond Street Hospital for Children (GOSH) to start his treatment…… Read More
“It was a traumatic time for him as he was only a baby, and being in the hospital environment made him very anxious. It was not just one off visits. We were there every week, in the Accident and Emergency waiting room or the emergency appointments at the GP, having X-rays or being asked the same questions over and over. He was even referred to a ENT specialist. By that stage I had already convinced myself it was cancer.” – Leah, Toby’s mum… Read More