Our Member of the Month this month is Ethan Feveyear.
At the end of January 2024, Ethan attended a routine Specsavers appointment on a Saturday. During the appointment, swelling on his retinas was noticed, prompting a referral to the hospital for further scans on Monday…… Read More
Our Member of the Month this month is Jack Bowden.
Jack was diagnosed with a brain tumour in February 2011 at the tender age of 18 months. Being a twin, the disparity between him and his sister became apparent…… Read More
Here you see a mother, threading her son’s last beads. Hope lead us to believe that George would love these beads forever, and use them to tell his story. Now the beads are a parents reminder of the journey that was endured with strength, love and (unexpectedly) joy.… Read More
Our Member of the Month this month is Lincoln Melling.
On February 19th, 2019, Lincoln received a diagnosis of stage 4 MYCN neuroblastoma, an uncommon and highly aggressive childhood cancer. Beyond the tumour, the cancer had also metastasised to his bone marrow, with notable hot spots detected on his femur, pelvis, and skull vault. At the tender age of 5, Lincoln faced this daunting challenge, with a 3-year-old sister by his side. This diagnosis shattered his family, plunging them into a nightmare that forever altered their lives…… Read More
Our Member of the Month this month is Oliver Mason. Oliver came into the world in September 2019. However, by May 2020, a small scab had begun to manifest on his scalp. This development prompted numerous visits and phone consultations with medical professionals. Unfortunately, the progression of addressing his condition faced obstacles due to the widespread impact of the Covid-19 pandemic. Over time, the condition of Oliver’s scalp steadily deteriorated, making the journey to finding a resolution more challenging.… Read More
Our Member of the Month this month is Bethany Desborough. On the 10th of July, the commencement of Bethany’s arduous journey unfolded when a mass was discovered within her abdomen. Seven days later, on the 17th of July, she underwent a surgical procedure that involved the extraction of both a tumour and one ovary. Following this initial intervention, a relentless course of six chemotherapy sessions ensued. Even after this, Bethany’s medical challenges persisted, necessitating further surgical intervention. On the 4th of December, she faced another critical surgery to remove her remaining ovary, accompanied by the removal of a mass near her liver and another in her pelvis.… Read More
Our Member of the Month this month is Elsie Mangham. In July 2022, Elsie was diagnosed with a brain tumour. The tumour has unfortunately caused Elsie to lose all of her sight in both eyes, and although she is now registered blind, she has not let this stop her one bit. ‘She has taken everything in her stride and been an absolute superstar!’… Read More
Life has taken an unexpected turn for Freddie and his family since his diagnosis at the end of June 2023. What began as a series of visits to doctors and emergency rooms for what seemed like routine illnesses—tonsillitis, sinusitis, hay fever—eventually led to a life-altering discovery. Today, we want to shine a light on Freddie, our Member of the Month, who has shown extraordinary strength and resilience in the face of adversity.… Read More
“Hari has faced many challenges so far, and his life has been filled with numerous medical appointments as well as serious hospital admissions. As Hari has gotten older, he has also been diagnosed with a genetic, mitochondrial condition…we just like to say that Hari’s diagnosis is awesome!”… Read More
On the 18th of February 2022, Katie & Timo’s life was flipped upside down when they encountered a parent’s worst nightmare. Their Little boy Niko, who was only two years old at the time, was diagnosed with B-Cell Acute lymphoblastic Leukaemia (ALL), a type of blood cancer. After confirmation of his diagnosis, Niko was quickly transferred to Great Ormond Street Hospital for Children (GOSH) to start his treatment…… Read More
“It was a traumatic time for him as he was only a baby, and being in the hospital environment made him very anxious. It was not just one off visits. We were there every week, in the Accident and Emergency waiting room or the emergency appointments at the GP, having X-rays or being asked the same questions over and over. He was even referred to a ENT specialist. By that stage I had already convinced myself it was cancer.” – Leah, Toby’s mum… Read More